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I am so proud of what CCFA is doing and the AMAZING  and DEDICATED people we have on board to help!  From staffers to volunteers and sponsors, it is because of you that the organization is able to provide support to thousands of people!

So, I was just checking my emails and see that they have now added a site for TEENS!  That’s right!  Our young people now have a forum at


This is in partnership with the NASPGHAN Foundation (for children with digestive disorders).

Understand, I get calls and questions weekly from parents with newly diagnosed kids.  Not to mention the personal calls I make to check on my teen friends.  This is a great resource for them!  Check it out and share your thoughts.  Kids, there is always room for improvement so don’t be afraid to share!